PLANNING!!

Hi everyone...

No news is good news right? It has been a while so i thought I would post a little update. Christmas was fabulous as was New Years. We spent it surrounded by friends and family which we love. It was wonderful!

Monique is doing great. She is growing and is now SUPER excited for her wish trip to Disney. She talks about it ALL the time now. Her mère mère got her the barbie glamour jet plane for Christmas and she has gotten over her fear of getting on an airplane. Now it's all she talks about.

Before I continue planning however, I have to sit and wait for her passport to arrive. I wasn't pressed for time with her passport because she didn't want to go yet. But since she has gotten over her fear of getting on a plane she wants to go March break. I am hoping it is not too late to plan once I get her passport. It will be a shame if we cannot go because of that technicality! So for now I am researching all the fun stuff we will do.

Monique wants to see a Cirque du Soleil show, meet princesses, see animals, see Cinderella's castle, Minnie and Mickey, Buzz Lightyear... (she loves the Toy Story 3 movie!!)... but the big things are the princesses. She loves them... especially Rapunzel and Tink! I cannot wait to see her eyes looking at all the magical things there. - I am excited too, I have always wanted to go to Disney. But this trip is about her and what she wants to do... so, maybe someday I will go as an adult trip and do all of the adult fun things there too!

November

Hi everyone... things are still going well. I thought I would share a few pictures with you. Monique is still loving hockey! I am so glad because I love bringing her and watching her on the ice.

Christmas is coming... she has a very long list as do most children. I just hope we are all healthy and happy.

October

Hi everyone,

Monique check-up went well. We are hoping to get another few years out of her last repair. keeping my fingers crossed.

School is going well and she is learning well. She loves her new glasses.

Monique is an active little girl. She has many activities which keep her going. She does Jazz dancing, girl's hockey and swimming. I want her to be involved with as much as she can now in case she cannot later in life. I want her to have all the experiences she needs in order to heal after the next surgery; to give her something to looks forward to after she has healed.

Another school year has begun

Hi everyone... I have not posted lately because we have been so busy. We camped all summer. Monique really enjoyed the outdoors! She started the second grade this year. She is getting so big. She also got glasses. Wait til you see... they are adorable. She looks so distinguished.
Monique has a cardio check-up at the end of September. I am really hoping it goes well. Keeping my fingers crossed.

Tea Party

What an amazing event! Monique had so much fun. She looked like a little Snow White. The events consisted of tea, cupcakes, singing, magic show, ballerinas, hip hop dancers and a belly dancer. Then there were arts and crafts and a ballon guy making balloon animals for the kids. Monique was the centre of attention... she will never forget the event I am sure of it.

The highlight of the day was seeing her face when she saw the Disney Princesses. Her face froze. Her feet froze... she squeezed my hand tight... "mom... look!" Too precious! Tink was her favourite!

Here are a few pictures...

Easter

Here come Peter Cottontail...

So Easter falls on my birthday for the 1st time this year. I think it's kinda cool.

Monique has been fabulous!! She is super excited for the princess tea party the Children's wish foundation is organizing as a fundraiser. She is super excited to wear her Snow White costume and is a beauty in it!! As you can see!

She wants a pink iPod for Easter... she is growing up fast and wants all the new 'cool' toys that come along with knowing they exist i guess...

Happy Easter to all!

Update!

Hey everyone!
Monique went for a check-up this week. Her cardiologist said that he was happy with what he saw on echo however her aortic valve is leaking a little. He said that it was because they had to tighten her valve so much to repair it, that it made the opening smaller, therefore there is more pressure going through that smaller space.

There is no way to predict how long the repair will last and she must be watched for signs of failure always just in case it lets go. It could be months or years.

Monique got her Sleeping beauty dress for the Princess Tea party. She is going to a photo shoot in her dress for the program. She is excited and the dress is beautiful and fits her perfectly!