busy... questions...

The school year is winding down again. I regret to announce that the planning didn't fall into place for us to go on Monique's wish trip this March break but she is looking forward to going very soon. I will make sure to let you know how everything turns out.

There has been a few changes in life lately which are a little difficult to absorb and explain. Monique now attends the school where I teach. I find this much easier as I can see for myself how her daily routine is going and how she is feeling.

Our last appointment at the Heart centre was o.k. The news we receive is never 100% positive but always optimistic. The measurements for Monique's aorta seem a little large and concerning. Her cardiologist wants an MRI done in the fall in order to get a better look. She had MANY questions this last visit. She watch her echo and asked what all the different parts and sounds were. When she met with her cardiologist he assured her that she should not worry about her heart. She said she did sometimes. She was in the hospital twice this past winter with the flu and chest pains. We spent March break in the hospital.

What will next year bring for Monique? I am unsure! I don't know. I wish I did. I wish I could tell her she never has to go through so much pain again. But I can't. As a mother it tears me apart. I feel as if I did something wrong to cause her to have to live this life. She does not know ay other life. But I know the difference. This is not the life you want your children to have. Parents who do not have sick children like we do say they understand but, they don't. I can appreciate them trying to imagine what it would be like. But nobody understands quite like other CHD parents.

PLANNING!!

Hi everyone...

No news is good news right? It has been a while so i thought I would post a little update. Christmas was fabulous as was New Years. We spent it surrounded by friends and family which we love. It was wonderful!

Monique is doing great. She is growing and is now SUPER excited for her wish trip to Disney. She talks about it ALL the time now. Her mère mère got her the barbie glamour jet plane for Christmas and she has gotten over her fear of getting on an airplane. Now it's all she talks about.

Before I continue planning however, I have to sit and wait for her passport to arrive. I wasn't pressed for time with her passport because she didn't want to go yet. But since she has gotten over her fear of getting on a plane she wants to go March break. I am hoping it is not too late to plan once I get her passport. It will be a shame if we cannot go because of that technicality! So for now I am researching all the fun stuff we will do.

Monique wants to see a Cirque du Soleil show, meet princesses, see animals, see Cinderella's castle, Minnie and Mickey, Buzz Lightyear... (she loves the Toy Story 3 movie!!)... but the big things are the princesses. She loves them... especially Rapunzel and Tink! I cannot wait to see her eyes looking at all the magical things there. - I am excited too, I have always wanted to go to Disney. But this trip is about her and what she wants to do... so, maybe someday I will go as an adult trip and do all of the adult fun things there too!