Hello again... it's been a while. We have been busy I guess. Monique's last cardiology appointment went well if you have been wondering. Her cardiologist said she was stable but was worried because of her complaints and her few episodes of having to sit out of an activity because her heart "hurt". I am waiting for a phone call. An MRI of her heart or a cardio cath may be in order to find out what is really going on. I also asked him how many Truncus cases there are in NS. he told me they see about 1 new one a year - not necessarily the same type as Monique. He also told me they treat Truncus much like Tetralogy of Fallot which I didn't know. Nice to know I guess.
Summer is coming. We all can't wait. Lots on the agenda. Monique has started another season of soccer. I am not sure if it will be any better then the last. It is late - from 6:30 to 7:30, and bedtime is 7 on a school night. We will see... by 7 she is ready to go home.
I am cutting sugar out of her diet as much as I can again to see if it will make a difference in her activity level and tolerance. She did well before but I guess we have gotten slack... so i guess it is our fault that she has been a little difficult. Funny how sugar and certain foods affect some kids so differently than others. We will see... hopefully we will get her all buckled down again and able to concentrate and listen a little better.
We got 2 kittens 3 weeks ago, Edward (the girls call her Egwart - they can't pronounce Edward, it is too cute!) and Bella. The kids love them to death. Edward is a little ham, outgoing as can be and has no fear while Bella is timid and affraid of everything, she growls at everything too! Hopefully she will settle in ok.
thanks for reading! ...
Then & Now
4 years ago
1 comment:
I'm glad to hear that things are going well for you all. Caden went to his 6 month checkup a few weeks ago. She said that everything looks about the same. I was freaking out for a week or two before the visit (like always) but she said that he looks pretty good, considering. I also asked how many Truncus kids they see. She said she graduated from med school 36 years ago, and he is the 4th or 5th case she's had. WOW!!! I'm thinking, so do you even remember everything?!?! I know that sounds bad, but you have to wonder. I have also heard that Truncus is close to TOF, and also close to Aortic Atresia (sp?). It's very interesting, or at least it would be if it wasn't my kid. I hope that all makes sense.
Anyway... Glad to hear things are going well. Please update when/if she needs more testing.
Ashlea
Post a Comment